?

Log in

Userpic

Topamax Support

Coping with the Side Effects of Topamax

Membership:
Open
Posting Access:
All Members , Moderated


About topamax_support:
After looking around LiveJournal for some good information on Topamax after starting it, I was unable to find some really good information on dealing with the side effects and answers to other questions and concerns I had about the drug, so I started searching around other sites on the internet. I found some information scattered throughout various sites as well as a few good message boards that I thought would be worth linking to from LiveJournal, so I decided I'd create a community specifically to support those who take Topamax to deal with other medical conditions.

Feel free to ask or share anything about life on Topamax here- questions about side effects of Topamax or suggestions of how to cope, funny stories of what you've done as a result of your side effects, links to other message boards, studies or informative sites etc.

Please remember that although we are all being treated with the same drug- Topamax- our medical conditions themselves will vary, especially since Topamax has many "off-label uses" as well. Each of us is struggling with our own conditions in additions to side effects of Topamax. Please treat other members of the community with respect. :)

I hope that you enjoy this space and find help coping with day-to-day life on Topamax.

-being_homeless, community moderator




Off Label Uses of Topamax:
Topamax has many "off label" uses. Not only is it used for migraine prevention and as an adjunctive treatment for epilepsy, but it has also been proven useful for monotherapy treatment for Epilepsy, (when only one anticonvulsant is used), Adjunctive treatment for adults with Bipolar Disorder and children and adolescents with Bipolar Disorder, Monotherapy for Bipolar Disorder, Cluster headaches, Eating Disorders, Vanity Dieting, Fibromyalgia, Depression, Post Traumatic Stress Disorder (PTSD), Alcoholism, Sleep Apnea, sleep/eating disorders, Autism, and Healing old external scars (such as from self-injury). (for more info or studies on these uses, see crazymeds.org or google topamax + whatever use you are interested in and you may be able to find more info).




Other Informative Websites:
crazymeds.org- an excellent site for those dealing with Epilepsy or Mental Illness. The site includes all sorts of information on psychiatric medications, including Topamax, a message board and chat room.

braintalk.org- another excellent site with message boards on dozens of neurological topics. If you can't find an answer to your question here, chances are high that someone there will know the answer you are looking for.

epilepsy.com- if you are on Topamax for Epilepsy, this site is great if you are looking for basic information on a variety of topics. They also have message boards.

topamax.com- Official Topamax for Migraine Website

topamax-epilepsy.com- Official Topamax for Epilepsy Website




Other LiveJournal Communities you may find of interest:
Epilepsy Communities
epileptics
seizuredisorder
brain_fuzzy

Migraine Communities
migraines
headaches

Bipolar Disorder Communities
bipolars
bipolarsucks

Eating Disorders
binge_and_purge
eatingdisorders

Misc:
brain_injury
neuroscience





No Insurance? Can't afford your Topamax? Ask your doctor about needymeds. Print this application and bring it to your PCP/neurologist and you may be able to qualify for free or low-cost meds through the Ortho-McNeil Patient Assistance Program.




from Topamax.com:
IMPORTANT SAFETY INFORMATION
Serious risks associated with TOPAMAX include increased eye pressure (glaucoma), decreased sweating, increased body temperature, kidney stones, sleepiness, dizziness, confusion, and difficulty concentrating. Tell your doctor immediately if you have blurred vision or eye pain.
More common side effects in adults are nervousness, coordination problems, fatigue, speech problems, slowed thinking, memory difficulty, tingling in arms and legs, and double vision; and in children, fatigue, loss of appetite, nervousness, memory difficulty, aggressive behavior, and weight loss. Your doctor may do simple blood tests to check for changes in electrolytes. Tell your doctor about other medications you take.


Please see the full prescribing information
acute mania, aeds, alcohol dependence, alcoholism, anti-epileptic, anticonvulsants, antiseizure medicines, aphasia, appetite suppression, autism, binge eating, binge eating disorder, bipolar medication, bp1, bp2, bpi, bpii, brain, brain disorders, brain injury, chemical imbalances, childhood-onset bipolar disorder, chronic illness, clinical depression, cluster headaches, complex partial seizures, depression, dopamax, dual diagnoses, eating disorders, epilepsy, epileptologists, epitomax, general cognitive impairment, grand mal seizures, headaches, hypomania, hypomanic, illness management, lennox-gastaut syndrome, manic, manic episode, manic-depressive, manic-depressive disorder, medication, medicine, memory loss, mental health, mental hygiene, mental illness, mentally ill, migraine prevention, migraines, mood, mood management, mood stabilizer, moods, neurologists, neurology, numbness, obesity, ortho-mcneil, panic attacks, partial seizures, partial-onset seizures, peer counselling, peers, pharmaceuticals, pills, posttraumatic stress disorder, psychiatrists, psychiatry, psychoactive, psychologists, psychology, ptsd, seizure disorders, seizures, side effects, side effects of medications, simple partial seizures, sleep apnea, sleep disorders, snoring, stroke, stupamax, support, support community, support group, temporal lobe dysfunction, temporal lobe epilepsy, temporal lobe seizures, tingling, tle, tonic-clonic seizures, topamax, topiramate, traumatic brain injury, ultra-rapid cycling, vanity dieting, weight loss, word find problems, www.topamax.com

Statistics